Jul 2010
That was our dilemma. Jeremy and I have really been in a quandary about this decision for the last month. Having an amnio would allow us to find out whether or not this new little baby has cf or not. The major reason why we were considering it is because when Asher was born we weren’t able to get him in to see his cf doctor until he was about 4-5 weeks old, which meant he wasn’t absorbing anything he was eating for a really long time. Which also meant he was not a happy baby for a really long time because he was literally starving. It was hellish, and something Jeremy and I didn’t want to go through again. So we met with a high risk doctor to talk about our options and left there feeling like we should probably have one done so we can be prepared to care for the baby right away if he or she needs meds.
Then I spoke with Asher’s Pediatrician (have I mentioned how much we love him too! Would totally recommend him if anyone is looking for a Ped) he basically discouraged us doing an amnio, recommended I call Asher’s doctor to see if there would be any harm done to the baby if we started him/her on enzymes while we awaited the test results, and said he would make a few calls to see how we could expedite the newborn screening process so we wouldn’t have to wait so long as with Asher. So I called Asher’s nurse (I know I’ve mentioned my love for her!) and she said that Asher was literally the first baby diagnosed with cf through the mandatory screening process and that things have changed significantly since he was born. She then told me that she is the one who is in direct communication with the state, and receives all of the test results for cf. She said all we need to do is call her when we have the baby and she will expedite everything for us. Yeah, that was pretty much all we needed to hear. Asher’s nurse is so wonderful, and we totally trust she will do whatever it takes for us to get the results asap.
So, I guess that was a really long way of saying we’ve decided we’re not going to find out if this baby has cf or not until about a week after he/she is born. Which is a total test of patience for me, but I guess this will just give us more time to pray and prepare for this next stage in life.
On a really fun note, we took Asher to his first theatrical experience to see Toy Story 3! Jeremy and I had been waiting for this movie for such a long time, and were so excited that it was going to be Asher’s first movie in the theater. We had such a great time! Asher had his Woody and Buzz toys, and we loaded up on popcorn chicken, and popcorn that was exploding with butter and salt. Asher did so great just sitting there in his little booster seat chowing down on some great dinner and taking in the entertainment. We had a little potty break, but besides that he did so great sitting and watching the movie, and even consoled mommy during the scary part. It was such a memorable night!
I think you have to just trust your instincts as parents and know that God will protect you either way. You guys are so thoughtful in all of the decisions you make. Just enjoy this time being preggers-it will go by so fast!
Such an incredible example of God leading your family, caring for all you & the baby! Thanks for sharing!
KIRK AND I WERE JUST TALKING TODAY IF YOU GUYS WERE GOING TO HAVE AN AMNIO DONE TO FIND OUT. SO GLAD YOU HAVE AN AMAZING TEAM OF DOC/NURSES WHO ADVOCATE AND GET THINGS DONE FOR YOU! I’LL BE PRAYING FOR PEACE AS YOU WAIT. LET ME KNOW IF I CAN DO ANYTHING ELSE.
I seriously got goosebumps when you said your nurse is going to help you out so much! How wonderful!
Wow, you can get popcorn chicken & booster seats at the movies now?! I am really behind the times on the theater experience I guess! Great pics of Asher’s excitement at the movies. 😀
What a fun family outing. I can’t believe how grown up Asher is getting. He will be a great big brother. I am praying with you and for you as we anticipate the blessing of another little Olimb. Love you lots!!
How can you not love Woody and Buzz?!? So glad you got to take Asher to it! What a fun night! Also, what a blessing to have such an amazing care team. PRAYING! Love ya!