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09
Oct 2009
Hypertonic Saline – Part 2
Thanks to everyone for your thoughts and prayers for us as Jeremy and I tried to make the best decision we could about whether or not to do this clinic study. It was a hard one for us. We just kept going back to the point that we’ll do whatever it takes to help Asher have the best lung function possible. So, based on the increased lung function adults are seeing with Hypertonic Saline (HTS) we considered it a blessing to have the opportunity for Asher to be a part of this study.
We had a 3.5 hour long appointment at the hospital which was…well, it was all a bit frustrating. Asher was the first child to officially walk through the process of getting set up with this med at pch, so there was a lot of confusion and computer problems and confusion and computer problems. It was long (I included a picture to prove it). But, Asher was great through the treatment, it didn’t really phase him. He just watched his Pooh show (thanks to Jeremy’s high tech ways) and took it like a champ. They took his vitals and listened to his lungs a few times, and because everything looked good Asher officially qualified for the study and we were sent home with a whole lot of new stuff.
This week has required a lot of prayer, and flexibility, and patience. That has mostly been for me though, like I said, Asher is a champ. Our routine has changed, we have a new med, new equipment, weekly forms to fill out, more rules to follow, all that kind of stuff. We’ll become familiar with everything pretty quickly I’m sure, and being a part of clinical studies will probably be pretty common for us with Asher, this week has just made me long for a cure even more.
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A cure IS out there, you’ve said it and I believe it. Asher is a rock star. You and Jeremy are awesome parents. Pray continuously and in all things be greatful, right? Your family is SUCH a blessing on all of us. We love you Olimbs.
I agree with everything Meagan said! We will be praying for you guys…and continuing to pray for that cure!!! We love you guys!!
What a sweet boy. We continue to pray for a cure. We love you…hope to see you soon!
I completely agree with Megan & Noelle’s comments! You guys are in our prayers!