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Feel the awesome.

 

 

06

Jul 2012

Person Head

I stopped trying to enforce a pants/shorts rule for Asher, the man loves to be free, so underoos it is!  I know one day I’ll crave seeing a little Avengers booty roaming around, so we’re embracing freedom!

I’m still not sure who Asher was talking to in this video, but it’s a total crack up!  And, what was even better was watching and listening to him take some bites of his breakfast with his “person head”.  “Mommy, can you believe I just ate from my one eye!!  I can’t believe it!  Pretty cool, huh?”

Brothers.

Yes.  Yes you are.  You both are my little (big!) heroes.

I figured out a month ago that between the two boys they take over 1340 pills a month…and that’s actually low, because Beck went up again on the amount of enzymes he needs.  I just looked on Asher’s equipment and he has spent 1225 hours doing his vest.  That’s 51 days.  Whenever I find myself feeling overwhelmed with dealing with insurance companies, managing doctor’s appointments, completing applications, keeping all of their medications filled and organized, and dealing with anything else that comes with this disease, I’m quickly humbled and completely ashamed.  These boys have so much that they need to do every day to take care of themselves.  They are the ones with the full plates.

How come he looks so massive here.  He truly looks like a teenager.  He even has the pillow over his head for effect, ha!

Is this not the coolest fort ever!  And, definitely the best spot for a popcorn and movie date :).

And, really, the sweetness here is off the charts!

 

 

5 Comments

  1. Reply
    Noelle

    Your posts always put a huge smile on my face! Your boys are just so cute! Can’t get over how big Asher looks in that bed picture – seriously does look like a teenager! And Beck’s smile…no words for how cute that is!

  2. Reply
    Meagan

    Rachel I am humbled by how humble YOU are. You have such a huge heart and it makes me want to be a better mom, and woman. You do SO much for SO many. The love you have for your boys oozes through these posts and it makes my heart so happy.
    Asher and Beck are going to have so much fun together!!! And I too love it when my little guy runs around in superhero underoos:)

  3. Reply
    erin

    Looks like Asher is really creative! And Beck has sweetness all over him! I am also glad SBC went good!

  4. Reply
    Gramma&Grampa Necas

    That video is so darn stinking cute,as are all the pictures!!

  5. Reply
    Lscorza

    I want to get him back over here with that person head and eat macaroni. I just really need to see that go down right before my very eyes. Wow! So completely awesome! His personality is just so huge!

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