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24

Jun 2012

In and Out

The fact that this happened in March perfectly describes how we’re a couple months behind everything over here, but…a couple of weeks after Beck was born, Jeremy and I put together a new room for Asher because we didn’t want him to feel like he was getting lost in the busyness of a newborn’s schedule.  Thankfully, he hasn’t had any troubles adjusting (besides learning how to be gentle and not play with Beck like he’s a transformer, ha!) but we wanted to recognize this new era for Asher since his life has greatly changed as well.  Commence, all things Superhero and Star Wars!  We couldn’t decide which one to go with since he loves both of them dearly.  All the gum chompin’ in this video makes me smile!

Jeremy and a couple of his friends took their boys backpacking for a night and had a wonderful time frolicking through the fern covered meadows. Jeremy said it was gorgeous and the boys had a blast adventuring, playing baseball with sticks, football, frisbee, and anything else that involved dirt.  He did mention a conversation with Asher that he won’t forget.  Asher had to stay back at camp with Jeremy to do his treatment while the other boys went off to explore.

Asher turned to Jeremy as he’s watching everyone walk off and asked very sadly, “Daddy, do I have to do my treatments when I’m five?”

Jeremy said, “Yeah.”

Asher asked, “Will I have to do my treatments when I’m ten?”

Jeremy said, “I hope not, Buddy.”

Ugh.  I hate CF.  I hate that he has memories of missing out because of this disease.  And, it’s just beginning.  We haven’t shared the seriousness of this disease with Asher, and don’t plan on seeking this out anytime soon.  If fact, we work hard to make him feel like he isn’t different by doing things like camping, but…he’s noticing by himself.  This little conversation strikes a flame in us to fight for him even more.  We’re looking forward to next year’s 5th Silent Auction and taking a step closer to a cure.  Please mark your calender for Saturday, February 23rd, 2013.  Please.

While the boys were gone, Beck and and I got some concentrated snuggle time which I ate up.  I can’t get over how cute this video is!  Something weird happened with the audio, but he was just hanging out, running his hands through his hair, playing in his jungle.  It’s adorable watching him learn how to use his hands and grab things now :).

 

 

3 Comments

  1. Reply
    krista

    Gosh, I hate CF with you. I am so thankful that Jeremy can honestly answer that a cure might be found in the next 5 years (or sooner). The cure is so close now! Thanks for letting us pray & fight with you guys! I love the manly camping pics. . . I am sure Asher just loves getting to do that with his daddy! And, seriously, great job on the bedroom! It is perfect!

  2. Reply
    Noelle

    Oh first, that video of Asher is too much!! Between the gum chomping and the pure excitement over the news that he’s getting a new room still have me smiling! Too cute! And I agree with Krista’s comment…that he can even answer that there may be a cure in 5 years is such a breath of fresh air…continuing to pray for that and that it happens even sooner than 5 years!!

  3. Reply
    Meagan

    LOVE the new big boy room! How in the world did you surprise him? You two are GOOD. Love the excitement oozing through that video:)

    Sad that Asher is started to piece it together that CF is such a part of his life, but so thankful that his daddy can tell him that someday there will hopefully be a cure. There will. And we will all come and cry with you tears of joy.

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