Feel the awesome.
27
Dec 2011
Christmas 2011
I can’t even bring myself to talk about Christmas without honoring our sweet baby Paxon. Last year during Christmas Eve services I was in labor, and my water broke a few hours later. Last year on Christmas day we welcomed our little baby into this world…and said goodbye just 11 days later. I really cannot believe it’s been a year. Some days the heartache is all consuming and feels like it happened just yesterday. Some days I still feel so hurt that this had to happen to him.
Paxon would have had a tracheatomy. He would have had multiple heart surgeries. He would have been severely mentally retarded. He would have had Cystic Fibrosis. But we would have loved to have taken care of him. We would have walked any road for our boy, and our fight for him would have been fierce.
When we met with Beck’s doctor, and we shared our history with him and Paxon’s story, I remember him being a bit surprised that Paxon survived 11 days, after we told him his diagnosis. It struck me. It made me so thankful for God’s mercy, and the many people who prayed for his arrival and his 11 days…without either, his little life could have been even shorter. We are thankful for 11 days with our boy. We wish we could have been bouncing a little one year old on our leg for Christmas this year, but we are still so thankful for his life and how he changed ours. Christmas will forever be accompanied by tears and memories of our Paxon.
Jeremy made a beautiful piece of art for our wall in Paxon’s honor, and it’s officially my favorite thing in our home. It says, “we will carry him in our heroic tales and great love” with a metal and copper “11” over the words. It’s beautiful. His life was beautiful.
We’re thankful you are in the presence of the Lord for Christmas, sweet baby. We love you so much and miss you.
Grandpa and Grandma Necas flew in to spend Christmas with us this year. We’ve been traveling the city enjoying time together and the beautiful weather. We went to Christmas Eve services together, and I couldn’t stop taking pictures of Asher because he looked so stinkin’ handsome and cute :).
We set out cookies for Santa and carrots for his reindeer on Christmas Eve. I was planning on putting the carrots on the tray, but Asher thought they needed to be a little more available :). It’s been fun talking with Asher about Santa Claus, and he actually for the first time brought himself to sit on Santa’s lap because he wanted a Kinect so bad, ha! It worked out perfectly for us, because we actually got a Kinect for free! Zenpep (Asher’s enzyme) has done a Z-points rewards system for quite awhile. We could save up our points to buy Amazon.com gift cards, which came in quite handy this year. They just stopped offering Amazon.com gift cards (major bummer!), but we were able to get our purchase in just in time for Christmas. For the last couple of years we’ve explained to Asher after Christmas that Santa is just pretend and something we do for fun. He seems to enjoy the anticipation, and this year had lots of questions about who ate his cookies and carrots, ha!
[youtube]http://www.youtube.com/watch?v=nbOG5VnGyQE[/youtube]
Asher’s cousins were out of town, and apparently so was the rest of the community, so we had the privilege of using their super nice community pool all by ourselves. Jeremy and I sat and ate chips and cookies while Grandma and Grandpa played with Asher. Everyone had a great time :).
8 Comments
Leave a Reply
The teamASHER Silent Auction
A Slice of Yesterday
What a great post, Rachel. Loved all the pictures. Loved all you said about Paxon. Prayed for you all day on Christmas and know there was such pain, but hope you had some great joy with Asher as well. That picture of you rocking Paxon will always be one of my favorite pictures I’ve ever seen. Love you my sweet friend and so thankful for you and your family!
I am glad you had a good christmas. Asher knows how to have fun and looks so creative.
I am thankful you had 11 days with Paxon. It was nice to see those pictures again and the piece of art Jeremy made is so beautiful.
Such a sweet post honoring your precious baby Paxon’s life. I am thankful for the 11 days that God gave you with your son. The art piece is beautiful and I can see why its a favorite piece in your house. Glad you were able to have a fun Christmas with Asher.
I commented before watching Asher opening his Kinect. So cute! I love his moves.
This just makes my heart ache for your hearts all over again. I love love love seeing sweet little Paxon’s pictures again and can FEEL the love you and Jeremy have for your boy. I love your heart, Rach.
And oh boy…Asher is such a stud. He just makes me SMILE…every time!!!
I loved this post so much. You and Jeremy are continually honoring Paxon’s life through the way you live your lives. I loved staring at the pics of your beautiful miracle baby. I miss him so much for you. Jeremy’s art piece is simply perfect.
I loved looking at all your Christmas pictures, also. Asher is adorable, as always. We’ve got to come over and check out your Kinect! They are the coolest! I really love the family pic with your parents–great one!
The video of Asher is priceless! His little jumping and fruit ninja was awesome!
Loved this post. Rach you are great at this, specifically communicating your thoughts. You all looked stunning for Christmas eve service. Asher looks GREAT in that fancy apron. Loved seeing Paxon’s pics, miss him. Thanks for posting.