Feel the awesome.
28
Dec 2010
Today
This road is dark, hard and old.
Our feet are tired, sore and cold.
Today uncertain. Tomorrow unknown.
But He is our light, our shelter, our gold.
Three days into this and we are starting to see ahead into the dim future. Paxon came out of the gate fighting and showing great promise. We had a lot of hope that first day and evening. Hope that he would be an exception to the expectations. Hope that he would go home with us in a few short days or a week or two at most. Those hopes are fading and reality is setting in.
Over the last day and night, Paxon has had a lot of issues with his breathing. He has been unable to keep his oxygen levels up without a mask and that task became more and more difficult to regulate as time passed. At the same time, his CO2 levels continued to climb. His respiratory rates continued to climb. He was getting tired. He was unable to sleep. This culminated in the decision of him being intubated and placed on a ventilator early this morning.
This moment has been quite the blow to us. The sudden realization that many of the fears about what he was going to possibly be dealing with in life are true. That there is a good chance that he will not be avoiding many of the fates that were predicted for him. We went from being able to go home “once we get him feeding properly” to being here for “months”. We are facing a tracheotomy and the possibility of a different heart surgery is now being discussed.
There is much we don’t know but what we do know outweighs it all. Our boy is strong and ready to fight. Our love for each other continues to grow through these difficult times. And our God is good, faithful and merciful.
Please continue to pray for him, his doctors, and us.
– Jeremy (Paxon’s Daddy)
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The teamASHER Silent Auction
A Slice of Yesterday
My dear friends. There are no words that could make all things right. I will just simply say I love you guys…all 4 of you. I will continue to fervently pray for your family, your doctors and that God would work in a miraculous way!
Thank for letting us journey with you! Can’t stop thinking and praying…Paxon is such a gift.
I’m with Summer…there really are no words. You are so right that God is good, faithful and merciful despite these circumstances. We will keep praying for little Paxon and praying that you will feel God’s arms holding you tight as you walk through this with your little guy. We love you all so much.
So sorry to hear this. Hopefully the respirator will help him rest and gain strength. Praying for peace, strength, and comfort for all of you.
Matthew 11:28 “Come unto me, all ye that labour and are heavy laden, and I will give you rest.”
Jeremy, thank you for the update. Many many many are praying for all of you. We will continue to pray and support you on your journey. Hoping little Paxon is able to rest and regain some of his strength. Praying God will move mountains. Love to all.
Paxon is one sweet strong fighter – he’s an Olimb. I’m thankful for the good, faithful, and merciful God that we do serve who loves Paxon more than we ever could. Praying for you. Much love!
I send my love to you through my tears. Our God is good and he loves us. Praying for healing, comfort, rest & strength.
Jeremy-
Thanks so much for the update. I’m right there with so many people…checking all day long for new updates and praying throughout the day for your family. Don’t forget what you said…Paxon came out fighting! I’m so thankful to read that you and Rachel are growing closer through this…it is overwhelming in every way. I’m praying for strength for Paxon…for rest for you and Rachel and am thankful that God is on His throne. He is faithful and His mercies are new every morning! Love you all!
I love you guys!
Thank you for the update Jeremy, and sharing your heart! We are praying!
Hello, Rachel and Jeremy, A scripture I have claimed often —–BE STILL AND KNOW THAT I AM GOD. I just let it run through my head over and over. It will give you a respite—-a time for strengthening. Our love and prayers for your children!! Also for Pat and Linda as they take care of Asher. And for the two of you….hold fast to one another.
Wow….I’m at a loss of word…I don’t know what to say! I’m sooo sorry to hear this…I can’t even imagine what you are going through! I’m praying that Paxon remains strong and a fighter…Thanks for keeping us posted! Rachel and Jeremy try stay strong and keep your heads up…I know its gotta be hard! I am praying for better results to come…. Love you guys!
We are praying constantly. Love you guys.
Praying for you and your boy! May you find your comfort in the great comforter. Thank you for allowing us to be apart of this journey.
Blessings
All four of you are in my constant prayers. Lord, have mercy!
No words…just praying for an overwhelming amount of God’s grace, comfort, and strength to be given your family.
We can’t stop thinking and praying for the four of you!” We have this hope as an anchor for the soul,firm and secure.” Hebrews 6:19. We love you!!!
Praying in confidence, knowing: that our God is so good, He loves us more than we know, sweet Paxon is His, created in HIS image, that He is a miracle worker, that His peace is beyond all understanding, that the groanings and intercession in His throne room happening now are for His greatest glory and our greatest good and ultimately,that the super abundance of God (Grace) in these moments is more than sufficient. We weep and pray and love you all because He has made us family by His great Grace and Mercy.
-Paul, Lauren and Evy
clinging to the Savior in prayer…
Still praying and sending much love to your sweet, sweet family. The scriptures quoted above are all such a comfort! How about another: I can do all things through Christ WHO GIVES ME STRENGTH. Rely and rest in Him. He will carry you through this valley.
When things seem so trying, you must be so encouraged by all the words on this page….such beautiful caring friends who speak words of encouragement. So glad you are united in love for one another and your hope in God for all things. Paxon is in your beautiful loving arms and He is in the hands of God, who blesses the young, gives strength to the weak and holds all of you as precious in His sight. Much love.
No words to say but I will listen if you need to talk.
Rachel and Jeremy ~ You are so kind to take time to let us all know how your precious Paxon is doing! Thank you! You have a army of saints gathered around to pray for Paxon, Asher, Mommy, Daddy and Grandparents and the doctors and nurses caring so tenderly for your son.
Romans 12:15 tells us to “Rejoice with those who rejoice and weep with those that weep”. This is what your friends, family and believers in many other areas around the country are doing for you. May you find strength for this journey and may you see and feel God each step.
Sending you our love to our dear friends. Scott & Colleen Fulmer
We are crying…
We are so sorry…
And we WILL continue plead with God to continue to hold the four of you tightly and hug and heal Paxon.
Praying that little Paxon will get some rest so he’ll have the strength to continue this fight for life. Praying for comfort for both of you. God is so good and He knows what you can handle. You are strong through Him.
Love bears all things,believes all things, hopes all things, endures all things. Love never ends. You love Paxon and we love you and your family. Keep bearing, believing, hoping and enduring. We will keep praying for the strength of the Lord to energize you, the comfort of the Lord to surround you, and the power of God to carry you through.
We love you, Jeremy, Rachel, Asher & Paxon! We will continue to pray fervently for your beautiful boys.
We love you both and we are praying for all 4 of you! We have notified our new church here and they will be praying to.
Jeremy, Rachel, Asher and Paxon-
You are all in our prayers and lifted up to the Great Maker Above morning and night. Remember God has his comforting arms wrapped around you. You have so much love coming from so many friends and family. I am a friend of Colleen and Scott’s and pray for you daily. I know that God has special plans for your strong Christmas Miracle and he is your fighter. Prayers, love and light go up for all 4 of you and your parents, nursing and dr. staff.
In His Name,
Thank you for the updates. We love you guys and are praying constantly.
Jeremy…wow! I’d like to say I understand what you and your wife are going through. But the truth is I can’t. Having kids of my own, I can only imagine what you both are going through. I have a deep love for them and I thank God for blessing my wife and I with them. It is awesome to know how much more God loves us in comparison to loving our kids. Your faith in God is an inspiration to me. I am praying for you and your beautiful family. Thank you, Jesus, for being in control. <
My heart aches for the pain in your words. I can’t begin to imagine where you guys are emotionally. We’re pulling for Paxon here, wishing we were there to lend concrete help. We love you guys and are looking eagerly for the day when your four will meet our three.
Praying right now for you.
Going to my knees for you trusting the Holy Spirit to intercede with groanings too deep for words.
We’re friends of the Fulmers.
Michael and Janet Shoaff
Praying and believing God can do BIG things.
love u guys!
Thanks for the update and we are continuing in prayer. We agree with the comments above and Pray, Phil 4:13…I can do all things through Christ who is my strength. Christ is giving strength to all of you to endure and press on. We love you all so much!
Praying for you all…praying hard…with confidence in His mighty power. We love you all so very much!
“Be strong in the Lord and in his mighty power.” Ephesians 6:10
We are here in Greer and drove in town to get an update. You are not alone, even when Satan whispers that lie. You have an army of Saints lifting Paxton, you, Asher, Grandparents, etc up.
We pray for gentle, compassionate doctors and for you two to have clarity in your decision making. Paxton has a life worth fighting for. He has the best, most equipped parents in the world. We love you deeply.
Our continued prayers, tears, and love for all of you.
So kind of you to let us follow Paxon’s progress. Your story is especially poignant to those of us who work in connection with Crisis Pregnancy Center. I have already shared your story of courage and trust in God with a woman facing a difficult pregnancy. Paxon (and the Olimb’s) are loved by so many. We pray that God will give you strength and rest to care for Paxon this day. God bless.
Thank you for keeping us update on what is transpiring with all of you. I am so reminded now of the phrase “I don’t know what your future holds, but I know who holds your future. May you continually feels God’s overwhelming presence in your life and may God supernaturally supply all your needs.
Blessings!
Crying and praying as we read your recent update…A candle continues to be lit in our home for your family and for God to bless the medical team taking care of Paxon. Pics of him are so very precious….The song, “I can only imagine” goes thru my mind. Love you amd God bless Ashton, and Gramma and Grampa Necas to stay healthy and strong.