Feel the awesome.
14
Sep 2010
Boys rock.
Love him…
So happy to say this morning ended another era! The era of the Hypertonic Saline study, WAHOO!!! We gladly brought back the binder and the big box of the study meds this morning. No more weekly paperwork, monthly paperwork, extra visits to the hospital, study phone calls, keeping every single vial we use, using their specific nebulizer and machine for this med, and not being able to run his vest while he’s on it! Sigh…so nice to close the book on this one. Captain Curious, Jeremy, had to taste the “Hypertonic Saline” solution the first day we signed up for the study and discovered we definitely got the placebo. So, I’m not going to say we’ve been wasting time this last year, but I will say we’re excited to move on to the real, authentic, Hypertonic Saline that we should have in a few days. I’ve heard it’s pretty potent and usually induces a lot of coughing (this is good), so we’ll see how our little man does.
Asher is rockin’ the height and weight percentiles! He’s in the 50th-75th percentile! He is 38.14″ tall, and weighs 33.7 lbs! We’re SO blessed and thankful for his progress. He’s been doing so great. For the last three months he’s been off Tobi and hasn’t been sick, and we feel like we’re on easy street right now. It’s been wonderful. The Lord has been so kind to us to give us this break right now, especially with everything that’s going on with Paxon. It’s been such a blessing!
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The teamASHER Silent Auction
A Slice of Yesterday
What a much-needed break:) So glad that Asher is rockin on in his usual style and doing SO well. He is SO BIG! I love the picture of him. You have such a gift of capturing emotion in your pictures Rach.
Yeah for the great report! Many people in the future will benefit from your faithfulness to the saline study. So glad that Asher is doing so well even though he was only on the placebo. Can’t wait to see you guys and get lots of hugs!
So glad Asher is doing great. Cute picture of him playing in the water. Makes me want to play with you guys…
Silver Fox & Captain Curious. Sounds like a pair of superheroes!!!
Way to go, Ash-man!!! Clearly you are a little super hero yourself– rockin’ the hypertonic saline & tobi world!
Great progress report! And a perfect picture to go along with it.
What a relief!!! I’m excited/anxious to hear about the HTS! What a rock star little Asher is! Thank ALL of you for participating in the study to help benefit the health of all of our little ones. And yes, what an enormous blessing Asher is staying healthy. We continue to pray…hugs! xo
I’m so happy for you all being finished with this study. We aren’t far behind you. And what a blessing to be cruising on easy street right now. I know you need some respite from, well, life. 🙂 We are praying for you and your family all the time. God bless. And with your odds lately, please go play the lottery!
What GREAT NEWS,Can’t Wait to give you Hugs&Kisses! Just a few Hours Away,Safe Flight