July

Beck, Daddy and Grandpa Campout! Beck is so lucky to get to have these memories :).

Asher worked his tail off at a soccer camp this week. He loved learning new soccer skills and prepping for the new soccer season, we were so thankful for Grandma and Grandpa Necas treating him to his club level training. While Asher was at camp, Beck and I got to have some dates which was so so very sweet. He’s just the best little Buddy to run errands and spend the day with :).

He wanted me to buy this. Rice is his favorite :).

After Asher’s soccer camp at the end of the week, he got in the car and said, “Mom, let’s go on a date to see the Incredibles!” How can I say no to that :). Love him so very much!!!

Beck’s lung function had been dropping quite a bit since March, and his Doctor wasn’t ok with it…and neither were we. Beck has never been admitted for a cf clean out before, and so we hadn’t really gotten a good picture of how his lungs are doing. Beck went in for his first admit for a picc line to receive 2 weeks of iv antibiotics and to have a bronchoscopy done to look at his lungs. The concern was that there was a bacteria that wasn’t showing up on his throat cultures that was growing deep that we needed to address. The whole admit, and the procedures were quite similar to what Asher had gone through last July.

We had one last appointment in hopes that his pft’s would have increased, but instead Beck and I went home to pack some bags and wait for a call that his room was ready.

We wanted a family picture before Beck and I took off for the hospital.

We were on a strict schedule on antibiotics every four hours, and four treatments a day.

He loved getting to eat whenever and whatever he wanted…it was mostly fries :).

These two. They’re brothers AND friends.

We were in lock down during our 5 days there, but when we found out we were going home, we got the approval for the Child Life Specialist to take Beck on a little picture scavenger hunt around the floor. He was so happy to walk around.

This. Sigh…this was the worst for everyone. His picc line had been placed too far, it was actually in his heart (ugh!) so they needed to take off all the dressing and move the line. This resulted in the most heart-wrenching moment I’ll never forget. Beck asked Asher to go with him to hold his hand. Beck lost his mind because it was hurting him so bad, which caused Asher to start weeping while he was holding Beck’s arm and pushing his head against me. Seeing both my boys broken was all a bit too much for me. There was no chance of being strong. We were all a mess. Unfortunately, he needed to have his dressing changed two more times after this. This was definitely one of the hardest parts of the whole time for Beck, but he was so very strong and brave.

We were so thankful to be able to be discharged from the hospital and be at home to finish out Beck’s round of antibiotics and care. Beck, you did a really hard thing, and we were so proud of you!

Grandma Necas came for a visit and got us all ready to start school! We were so thankful to have her help, and it’s always fun that she can be here to celebrate the boys starting a new year. The night before school starts, we like to have a family dinner and a little interview with the boys as a sort of time capsule to remember this stage in their lives.