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Feel the awesome.

 

 

16

Feb 2020

November

Lots of soccer field time. We love cheering our boys on!

Thanks to Hope Kids, we were able to take Asher to see The Black Keys in one of their suites! It was a great night together!

Fun times at home!

Asher had a really great night at church with all of his Ignite buddies…and a couple of friends from school joined Asher and Carter! Giving these boys a ride home and listening to them laugh and joke had Jeremy and I in stitches!

Our neighborhood had a cute spring fling with activities for the kids and free food. Asher, Dad and I were cracking up that you wanted to jump on and take a pony ride! We’re pretty sure you’re always going to be young at heart :).

I just had to capture this…Asher taking care of his little brother while crossing a busy street. Gosh, we’re so thankful for these two.

Beck had an assignment at school to make a boat that could float and hold an apple. Here’s his boat with flags included :). It worked great!

Jeremy was the Master of Ceremonies at the CFF Wine Gala this year! 

Jeremy wrote a sweet note to honor this special day. We’ll never forget Sunday, November 17th 2019…

“It was a pretty amazing morning for our family. We are so proud of Asher and his tender heart. His love for God is evident and it was one of the greatest honors of my life as a father and a pastor to baptize him this morning.”

  

The moment we’ve been waiting for since we received Asher’s diagnosis. Trikafta!!! Jeremy beautifully explains our emotions…

“It’s been a whirlwind since this announcement was made public. The emotional overload that has come with this monumental moment should have been anticipated but it has still overwhelmed us. 12 years of fighting against this disease together has required a steel will and a highly developed sense of defensiveness. We have trained ourselves to be aggressive, to never back down, to battle at every turn, to speak out, to try to be realistic and to keep hope in front of us.

But in order to fight effectively, we also were conscious to keep hope at arms length. Too much hope can lead to unrealistic expectations and dashed dreams. We have been cautious to not let our hopes for a promised future keep us from fighting hard for our realistic today. It would be too costly to get distracted by dreams.

So when this moment has finally arrived. The day we have talked to each other about in our darkest of moments, in hushed tones through misty eyes. When that day arrived, my heart didn’t quite understand how to react. We are overjoyed. We are elated. We are hopeful. We are thankful. And yet, my heart still hasn’t let down it’s defenses. The implications of what just happened are so incredible and so pervasive into nearly every corner of our lives, some part of me is still fighting to keep hope at bay.

But it’s real. This is it. This is the moment we have waited for. This is the moment we have fought for. This is the moment where everything changes.”

https://www.cff.org/…/CF-Foundation-Celebrates-FDA-Approva…/

P.S….I just have to make mention of your sweet heart, Beck. This picture brought me to tears. Here you are beyond excited for your brother, even though you know that you need to wait a little while for your turn at Trikafta. You truly are the best little brother, Beck. We all love you so very much!

Thanksgiving with the Olimbs.

Asher got to take his first dose of Trikafta on Thanksgiving morning!!! What beautiful timing. Until today he hasn’t been feeling great because this med is literally changing how his entire body has operated for the last 12 years. We cannot adequately express the hope Trikafta ignites within us. We pray Beck will have the same opportunity soon too! Although the Cards bit the dust today, going to see the game with Hope Kids was a fun way to wrap up this very special Thanksgiving ❤️.

 

  • by rachelolimb
  • 1 Comment
  • Feb 16, 2020
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One Comment

  1. Reply
    Grandma Olimb

    Exciting times. God is so good!

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